Please use this identifier to cite or link to this item:
http://bura.brunel.ac.uk/handle/2438/28279
Title: | Mission creep / data misuse |
Authors: | Lau, PL |
Issue Date: | 19-Jun-2023 |
Publisher: | EurGCT |
Citation: | Lau, P.L (2023) Mission creep / data misuse (European Gene and Cell Therapy Project). Edinburgh: EuroGCT, pp. 1 - 20. Available at: https://www.eurogct.org/research-pathways/public-involvement-and-data/mission-creep-data-misuse (accessed: 29 January 2024). |
Series/Report no.: | European Gene and Cell Therapy Project |
Abstract: | Data misuse, also known as mission creep, in the context of this research pathway entry - goes to the core of (mis)using a patient’s personal health data, beyond the purpose(s) for which it was collected. Whilst it may sometimes be closely related to function creep, a very well-known phenomenon in the field of science and technology studies (describing an instance where systems or technologies expand beyond their initial scope of deployment) - mission creep or data misuse is more focused on the legitimacy and purposes for which patient data is collected, used, stored, and processed. |
Description: | EuroGCT provides reliable and accessible information about the use of cells and genetic material to treat disease - for the public, patients, and researchers. |
URI: | https://bura.brunel.ac.uk/handle/2438/28279 |
Other Identifiers: | ORCID iD: Pin Lean Lau https://orcid.org/0000-0002-2447-9293 |
Appears in Collections: | Brunel Law School Research Papers |
Files in This Item:
File | Description | Size | Format | |
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FullText.pdf | © Copyright 2023 EuroGCT and contributing author. | 316.47 kB | Adobe PDF | View/Open |
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