Brunel University Research Archive(BURA) preserves and enables easy and open access to all
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Please use this identifier to cite or link to this item:
http://bura.brunel.ac.uk/handle/2438/28279Full metadata record
| DC Field | Value | Language |
|---|---|---|
| dc.contributor.author | Lau, PL | - |
| dc.date.accessioned | 2024-02-11T16:06:11Z | - |
| dc.date.available | 2024-02-11T16:06:11Z | - |
| dc.date.issued | 2023-06-19 | - |
| dc.identifier | ORCID iD: Pin Lean Lau https://orcid.org/0000-0002-2447-9293 | - |
| dc.identifier.citation | Lau, P.L (2023) Mission creep / data misuse (European Gene and Cell Therapy Project). Edinburgh: EuroGCT, pp. 1 - 20. Available at: https://www.eurogct.org/research-pathways/public-involvement-and-data/mission-creep-data-misuse (accessed: 29 January 2024). | en_US |
| dc.identifier.uri | https://bura.brunel.ac.uk/handle/2438/28279 | - |
| dc.description | EuroGCT provides reliable and accessible information about the use of cells and genetic material to treat disease - for the public, patients, and researchers. | en_US |
| dc.description.abstract | Data misuse, also known as mission creep, in the context of this research pathway entry - goes to the core of (mis)using a patient’s personal health data, beyond the purpose(s) for which it was collected. Whilst it may sometimes be closely related to function creep, a very well-known phenomenon in the field of science and technology studies (describing an instance where systems or technologies expand beyond their initial scope of deployment) - mission creep or data misuse is more focused on the legitimacy and purposes for which patient data is collected, used, stored, and processed. | en_US |
| dc.description.sponsorship | European Union's Horizon 2020 research and innovation programme under grant agreement No 965241. | en_US |
| dc.language.iso | en | en_US |
| dc.publisher | EurGCT | en_US |
| dc.relation.ispartofseries | European Gene and Cell Therapy Project | - |
| dc.relation.uri | https://www.eurogct.org/ | - |
| dc.rights | © Copyright 2023 EuroGCT and contributing author. | - |
| dc.title | Mission creep / data misuse | en_US |
| dc.type | Other | en_US |
| dc.relation.isPartOf | European Gene and Cell Therapy Project | - |
| pubs.publication-status | Published | - |
| dc.rights.holder | EuroGCT and contributing author | - |
| Appears in Collections: | Brunel Law School Research Papers | |
Files in This Item:
| File | Description | Size | Format | |
|---|---|---|---|---|
| FullText.pdf | © Copyright 2023 EuroGCT and contributing author. | 316.47 kB | Adobe PDF | View/Open |
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