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dc.contributor.authorRyan, JM-
dc.contributor.authorMcKay, E-
dc.contributor.authorAnokye, N-
dc.contributor.authorNoorkoiv, M-
dc.contributor.authorTheis, N-
dc.contributor.authorLavelle, G-
dc.identifier.citationBMJ Open, 2020, 10 (9)en_US
dc.description.abstract© Author(s) (or their employer(s)) 2020. Objective To compare the performance of the EuroQol 5D youth (EQ-5D-Y) and child health utility 9D (CHU-9D) for assessing health-related quality of life (HRQoL) in children and young people (CYP) with cerebral palsy (CP). Design Cross-sectional study. Setting England. Participants Sixty-four CYP with CP aged 10-19 years in Gross Motor Function Classification System (GMFCS) levels I-III. Main outcome measures Missing data were examined to assess feasibility. Associations between utility values and individual dimensions on each instrument were examined to assess convergent validity. Associations between utility values and GMFCS level were examined to assess known-group differences. Results Missing data were <5% for both instruments. Twenty participants (32.3%) and 11 participants (18.0%) reported full health for the EQ-5D-Y and CHU-9D, respectively. There was poor agreement between utilities from the two instruments (intraclass correlation coefficient=0.62; 95% limits of agreement -0.58 to 0.29). Correlations between EQ-5D-Y and CHU-9D dimensions were weak to moderate (r=0.25 to 0.59). GMFCS level was associated with EQ-5D-Y utility values but not CHU-9D utility values. Conclusion The EQ-5D-Y and CHU-9D are feasible measures of HRQoL in CYP with CP. However, the two instruments demonstrate poor agreement and should not be used to measure and value HRQoL in CYP with CP interchangeably. We propose that the CHU-9D may be preferable to use in this population as it assesses concepts that influence HRQoL among CYP with CP and provides less extreme utility values than the EQ-5D-Y.en_US
dc.description.sponsorshipAction Medical Research; Chartered Society of Physiotherapy Charitable Trust; The Henry Smith Charity (GN2340).en_US
dc.publisherBMJ Publishing Groupen_US
dc.rightsThis is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See:
dc.titleComparison of the CHU-9D and the EQ-5D-Y instruments in children and young people with cerebral palsy: A cross-sectional studyen_US
dc.relation.isPartOfBMJ Open-
Appears in Collections:Dept of Clinical Sciences Research Papers

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