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DC Field | Value | Language |
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dc.contributor.author | Clare, L | - |
dc.contributor.author | Pentecost, C | - |
dc.contributor.author | Collins, R | - |
dc.contributor.author | Martyr, A | - |
dc.contributor.author | Litherland, R | - |
dc.contributor.author | Morris, RG | - |
dc.contributor.author | Quinn, C | - |
dc.contributor.author | Gamble, LD | - |
dc.contributor.author | Sabatini, S | - |
dc.contributor.author | Victor, C | - |
dc.date.accessioned | 2023-08-02T15:31:07Z | - |
dc.date.available | 2023-08-02T15:31:07Z | - |
dc.date.issued | 2023-07-12 | - |
dc.identifier | ORCID iD: Linda Clare https://orcid.org/0000-0003-3989-5318 | - |
dc.identifier | ORCID iD: Claire Pentecost https://orcid.org/0000-0003-2048-5538 | - |
dc.identifier | ORCID iD: Rachel Collins https://orcid.org/0000-0002-3405-7932 | - |
dc.identifier | ORCID iD: Anthony Martyr https://orcid.org/0000-0002-1702-8902 | - |
dc.identifier | ORCID iD: Robin G Morris https://orcid.org/0000-0001-7767-5258 | - |
dc.identifier | ORCID iD: Catherine Quinn https://orcid.org/0000-0001-9553-853X | - |
dc.identifier | ORCID iD: Laura D Gamble https://orcid.org/0000-0001-8496-9705 | - |
dc.identifier | ORCID iD: Serena Sabatini https://orcid.org/0000-0002-3618-6949 | - |
dc.identifier | ORCID iD: Christina Victor https://orcid.org/0000-0002-4213-3974 | - |
dc.identifier.citation | Clare, L. et al. (2023) 'Evaluating ‘living well’ with mild-to-moderate dementia: Co-production and validation of the IDEAL My Life Questionnaire', Dementia, 22 (7), pp. 1548 - 1566. doi: 10.1177/14713012231188502. | en_US |
dc.identifier.issn | 1471-3012 | - |
dc.identifier.uri | https://bura.brunel.ac.uk/handle/2438/26883 | - |
dc.description | Data availability statement: The My Life Questionnaire is free to use. A printable version can be downloaded from the Living with Dementia Toolkit https://livingwithdementiatoolkit.org.uk/home/how-are-you-feeling-today/ or via this link https://medicine.exeter.ac.uk/reach/publications/. Requests for further information about the IDEAL My Life Questionnaire may be directed to IDEAL@exeter.ac.uk. IDEAL cohort data were deposited with the UK Data Archive in April 2020. Details of how to access the data can be found here: https://reshare.ukdataservice.ac.uk/854293/. | en_US |
dc.description.abstract | Copyright © The Author(s) 2023. Objectives: We aimed to co-produce and validate an accessible, evidence-based questionnaire measuring ‘living well’ with dementia that reflects the experience of people with mild-to-moderate dementia. Methods: Nine people with dementia formed a co-production group. An initial series of workshops generated the format of the questionnaire and a longlist of items. Preliminary testing with 53 IDEAL cohort participants yielded a shortlist of items. These were tested with 136 IDEAL cohort participants during a further round of data collection and assessed for reliability and validity. The co-production group contributed to decisions throughout and agreed the final version. Results: An initial list of 230 items was reduced to 41 for initial testing, 12 for full testing, and 10 for the final version. The 10-item version had good internal consistency and test-retest reliability, and a single factor structure. Analyses showed significant large positive correlations with scores on measures of quality of life, well-being, and satisfaction with life, and expected patterns of association including a significant large negative association with depression scores and no association with cognitive test scores. Conclusions: The co-produced My Life Questionnaire is an accessible and valid measure of ‘living well’ with dementia suitable for use in a range of contexts. | en_US |
dc.description.sponsorship | Economic and Social Research Council, National Institute for Health and Care Research (ES/L001853/2); Alzheimer's Society (348, AS-PR2-16-001). | en_US |
dc.format.extent | 1548 - 1566 | - |
dc.format.medium | Print-Electronic | - |
dc.language | English | - |
dc.language.iso | en | en_US |
dc.publisher | SAGE Publications | en_US |
dc.relation.uri | https://livingwithdementiatoolkit.org.uk/home/how-are-you-feeling-today/ | - |
dc.relation.uri | https://reshare.ukdataservice.ac.uk/854293/ | - |
dc.rights | Copyright © The Author(s) 2023. This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage). | - |
dc.rights.uri | https://creativecommons.org/licenses/by/4.0/ | - |
dc.subject | Alzheimer’s | en_US |
dc.subject | quality of life | en_US |
dc.subject | well-being | en_US |
dc.subject | satisfaction with life | en_US |
dc.subject | depression | en_US |
dc.subject | reliable change index | en_US |
dc.title | Evaluating ‘living well’ with mild-to-moderate dementia: Co-production and validation of the IDEAL My Life Questionnaire | en_US |
dc.type | Article | en_US |
dc.identifier.doi | https://doi.org/10.1177/14713012231188502 | - |
dc.relation.isPartOf | Dementia | - |
pubs.issue | 7 | - |
pubs.publication-status | Published online | - |
pubs.volume | 22 | - |
dc.identifier.eissn | 1741-2684 | - |
dc.rights.holder | The Author(s) | - |
Appears in Collections: | Dept of Health Sciences Research Papers |
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FullText.pdf | Copyright © The Author(s) 2023. This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage). | 641.31 kB | Adobe PDF | View/Open |
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