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DC Field | Value | Language |
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dc.contributor.author | Ryan, J | - |
dc.contributor.author | Fortune, J | - |
dc.contributor.author | Walsh, A | - |
dc.contributor.author | Norris, M | - |
dc.contributor.author | Kerr, C | - |
dc.contributor.author | Hensey, O | - |
dc.contributor.author | Kroll, T | - |
dc.contributor.author | Lavelle, G | - |
dc.contributor.author | Owens, M | - |
dc.contributor.author | Bryne, M | - |
dc.contributor.author | Walsh, M | - |
dc.date.accessioned | 2020-05-06T03:08:12Z | - |
dc.date.available | 2020-05-06T03:08:12Z | - |
dc.date.issued | 2020-12-22 | - |
dc.identifier | e041425 | - |
dc.identifier.citation | Ryan, J.M., Fortune, J., Walsh, A., Norris, M., et al. (2020) 'Transition from child to adult health services for young people with cerebral palsy in Ireland: a mixed-methods study protocol', BMJ Open, 10, e041425, pp. 1-6 (+10 supplementary pp.). doi: 10.1136/bmjopen-2020-041425. | - |
dc.identifier.uri | https://bura.brunel.ac.uk/handle/2438/20789 | - |
dc.description | Supplementary Data: This web only file has been produced by the BMJ Publishing Group from an electronic file supplied by the author(s) and has not been edited for content. | - |
dc.description.abstract | Copyright information © Author(s) (or their employer(s)) 2020. Introduction The transition from child to adult health services is a challenging and complex process for young people with cerebral palsy (CP). Poorly managed transition is associated with deterioration in health, increased hospitalisations and reduced quality of life. While international research identifies key practices that can improve the experience and outcomes of transition, there is a paucity of data in the Irish context. This research study aims to gain an insight into the experience of transition for young people with CP in Ireland. Methods and analysis A convergent parallel mixed-methods design will be used to collect, analyse and interpret quantitative and qualitative data. Participants will be young people aged 16–22 years with CP, their parent(s)/carer(s) and service providers. Quantitative and qualitative data will be collected through questionnaires and interviews, respectively. Quantitative data will be reported using descriptive statistics. Where sufficient data are collected, we will examine associations between the experience of transition practices and sociodemographic and CP-related factors, respectively, using appropriate regression models. Associations between service provider characteristics and provision of key transition practices may also be explored using appropriate regression models. Qualitative data will be analysed using the Framework Method. A coding matrix based on key transitional practices identified from the literature will be used to identify convergence and divergence across study components at the integration stage. Ethics and dissemination The study has been approved by the RCSI University of Medicine and Health Sciences Research Ethics Committee (REC201911010). Results will be presented to non-academic stakeholders through a variety of knowledge translation activities. Results will be published in open access, peer-reviewed journals and presented at national and international scientific conferences. | - |
dc.description.sponsorship | Health Research Board, grant number APA-2019–004. The study sponsor is RCSI University of Medicine and Health Sciences. | en_US |
dc.format.extent | 1 - 6 (6) + supplemental material (10) | - |
dc.language.iso | en | en_US |
dc.publisher | BMJ Publishing Group | en_US |
dc.rights | Copyright information © Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. http://creativecommons.org/licenses/by-nc/4.0/ This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: https://creativecommons.org/licenses/by-nc/4.0/. | - |
dc.rights.uri | https://creativecommons.org/licenses/by-nc/4.0/ | - |
dc.subject | cerebral palsy | en_US |
dc.subject | transition | en_US |
dc.subject | transfer | en_US |
dc.subject | transitional Care | en_US |
dc.title | Transition from child to adult health services for young people with cerebral palsy in Ireland: A mixed methods study protocol | en_US |
dc.type | Article | en_US |
dc.identifier.doi | https://doi.org/10.1136/bmjopen-2020-041425 | - |
dc.relation.isPartOf | BMJ Open | - |
pubs.publication-status | Published | - |
pubs.volume | 10 | - |
dc.identifier.eissn | 2044-6055 | - |
Appears in Collections: | Dept of Health Sciences Research Papers |
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